‘‘Only by being inclusive in our approach and including all groups will we be able to develop targeted drug therapies, which would be universally beneficial.”
— Margaret Pericak-Vance, Dr. John T. Macdonald Foundation Professor of Human Genetics
FAQs
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Alzheimer’s disease is a degenerative brain disease and the most common form of dementia. Dementia is not a specific disease. It's an overall term that describes a group of symptoms.
AD affects approximately five million people in the United States and is the most common form of severe memory loss (dementia). AD destroys parts of the brain that control memory, thinking, language and judgement.
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There is currently no "cure" for dementia. In fact, because dementia is caused by different diseases it is unlikely that there will be a single cure for dementia. Research is aimed at finding cures for dementia-causing diseases, such as Alzheimer's disease, frontotemporal dementia and dementia with Lewy bodies.
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Hispanic/Latinx, African Americans and Africans are among the fastest growing populations affected by Alzheimer’s Disease and Dementia, yet they are underrepresented in Alzheimer’s Disease (AD) research.
Researchers hope to reduce the risk factors for developing Alzheimer’s Disease and reverse the growing trend of AD among all people; especially among Hispanic/Latinos, African Americans and Africans who are the most burdened by this debilitating disease. By participating in this research study, you can help make a great contribution into this knowledge; so that when genetic causes of the disease start to produce potential treatments for the disease, underrepresented populations will stand in a position to benefit from these groundbreaking discoveries.
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Study participation is voluntary
Joining the study will not affect your healthcare or insurance
All information is confidential
There is no cost to the individual
A participant may withdraw from the study at any time
Travel to the research facility is not required
Although we are unable to provide individual results to families, we will send out periodic newsletters about research progress to participants
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50 years or older with or without memory loss symptoms?
Any age with memory loss or diagnosed with Alzheimer’s Disease or Dementia
Hispanic/Latinx
African American
African
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Read and sign a consent form
Give family and medical history
Answer a short environmental risk factor questionnaire
Do a test of memory, thinking, and mood concentration
Complete a brief neurological examination
Give permission to review the medical records of the individual with memory and thinking problems
Provide blood sample
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You don't necessarily need to have symptoms of memory loss or Alzheimer's disease to participate in a research study. Researchers are studying memory and Alzheimer's disease in all stages; even before symptoms appear.
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Recent memory loss that affects job skills
Difficulty remembering appointments
Difficulty performing daily tasks
Having trouble finding the right words to use when speaking
Disorientation or feeling lost in familiar surroundings
Poor or decreased judgement
Problems with abstract thinking
Misplacing objects
Changes in mood or behavior
Changes in personality
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Doctors diagnose Alzheimer's and other types of dementia based on a careful medical history, a physical examination, laboratory tests, and the characteristic changes in thinking, day-to-day function and behavior associated with each type. Doctors can determine that a person has dementia with a high level of certainty.
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There's currently no cure for Alzheimer's disease. But there is medicine available that can temporarily reduce the symptoms. Support is also available to help someone with the condition, and their family, cope with everyday life.